Ukukhulisa umntwana eneemfuno zezempilo ezikhethekileyo akuwona umsebenzi olula. Kungakhathaliseki ukuba ukukhubazeka komntwana wakho kunzima kangakanani okanye kungabonakali kwilizwe elingaphandle, akungabazeki ukuba akuyiyo into oyenayo engqondweni xa ufumene unesana.
Ukuba ngoku ufumanisa ukuba unyamekela umntwana onomnxeba we-spina bifida, usenokuphazamiseka kwaye udidekile. Mhlawumbi uzaliswa uthando kunye nomnqweno omkhulu wokwenza konke onako ukunika umntwana wakho ubomi obuhle.
Nangona ubomi obuya phambili angeke kube yinto okulindele, ungayisebenzisa. Ngenkxaso efanelekileyo, ulwazi kunye nesikhokelo, wena nomntwana wakho uya kuhlala ubomi obungcono kunokuba unokucinga xa ufumene ukuxilongwa.
Ukuqala, kukho ezinye izidingo zempilo ezisisiseko omele uziqonde kwaye uzilungiselele. Ukwazi okumele ulindele kunye nendlela yokusingatha kuzokwenza kube lula kwixesha elide.
Spina Bifida Basics
Ukuba ufikile kweli khasi, unokwazi ukuba ubuncinci malunga ne-spina bifida. Ngokufutshane, kukho iintlobo ezintathu ze-spina bifida.
- I-Spina bifida occulta - Le yindlela elula kakhulu ye-spina bifida. Kukho isikhala emgodini, kodwa akukho ukuvula okanye isangqa emva.
- I-Meningocele - Oku kwenzeka xa kukho isikhwama se-fluid ngasemva, kodwa intambo yomgudu ayikho esikhwameni. Ngokuqhelekileyo kuncinci kumonakalo wesondlo ngelo hlobo lwe-spina bifida.
- I-Myelomeningocele - Olu luhlobo olubi kakhulu lwe-spina bifida. Kukho isikhwama se-fluid kwinqanaba lomgca. Intambo yomthambo iphinde ifakwe kwisitya esikhuphayo emntwaneni, kwaye kukho umonakalo omkhulu weentsimbi.
Imiba yezoNyango ehambisana no-Spina Bifida
Ukuxhalabisa
Uninzi lwabantwana abane-spina bifida lunomonakalo kwiimbilini ezikhokelela kwisisu kunye namathumbu. Lo monakalo wesibindi uthinta indlela umntwana wakho azodla ngayo kwaye abe neentshukumo zokuhamba. Nangona ingcamango yokucoceka umntwana wakho ingabonakala iyethusa ekuqaleni, qiniseka ukuba amawaka yabazali benza oku ngempumelelo imihla ngemihla. Umongikazi wakho okanye ugqirha uya kukubonisa indlela yokwenza le nkqubo kwaye uqinisekise ukuba ukhululekile nayo ngaphambi kokuba uthumele ekhaya.
Kuya kuba soloko kubalulekile ukuqinisekisa ukuba umntwana wakho ufumana i-fiber eyaneleyo ekudleni kwawo ukuze kugcinwe izibonda. Isixa sokungenelela okufunekayo ukukunceda ekuhambeni kwezilwanyana kuya kuxhomekeka kubukhulu bomonakalo wenzwa. Abanye abantwana banako ukuhamba ngokuzenzekelayo xa abanye befuna i-suppositories ukuqinisekisa ukuba bahamba.
Iingxaki zeOrpecopic
Abantwana abane-spina bifida banokuba neengxaki ezahlukeneyo kunye neethambo. I-orthopedist iyinxalenye ebalulekileyo yeqela lonyango lakho. Ukuqinisekisa ukuba ufumene nayiphi na imiba ebalulekileyo efana ne-clubfoot, izivumelwano zomgogodla kunye nokuchithwa kwe-hip kubalulekile ukuze bakwazi ukulawulwa okanye ukulungiswa. Kukho ukungenelela okuninzi okunokunceda kule miqathango.
Ugqirha lomntwana wakho uya kuncomela unyango lwangokwenyama ukuqinisekisa ukuba uya kuba nomsebenzi omkhulu kunokwenzeka kumzimba wakhe ophantsi. Ukuba awukwazi kakuhle u-spina bifida, unokukholelwa ukuba wonke umntu onalo isitulo sabakhubazekile. Nangona kunjalo, akunjalo. Abantwana abaninzi kunye nabantu abadala abane-spina bifida bayakwazi ukuhamba okanye baqoke ngaphandle kwesitulo sabakhubazekile.
Ngamanye amaxesha ama-orthotics ayimfuneko ukunceda izihlunu kwiindawo eziphantsi zizinzile. Iqela lezononophelo lomntwana liya kuncedisa ukuba liya kuba luncedo. Abanye abantwana abakwazi ukusebenzisa iziphelo zabo eziphantsi kwaye kunokufuna ukusebenzisa isitulo sabakhubazekile.
Abantwana abancinane kwiinyanga ezili-18 bangase baqale ukusebenzisa isihlalo sabakhubazekile xa kubonwa kuyimfuneko kwaye kukhuselekile.
Impilo Yesikhumba
Xa abantwana (okanye abantu abadala) behla ukusetyenziswa kwenxalenye yomzimba, basengozini enkulu yokuphulwa kwebala. Xa kukho uxinzelelo oluqhubekayo kwicandelo elinye lomzimba, kulula ukuba ulusu lucasulwe kwaye luphuculise izilonda zengcinezelo. Ezi ziyakwazi ukuqala ukuphuhlisa ngeeyure ezimbini.
Kuya kubaluleka ukuhlola isikhumba somntwana wakho imihla ngemihla ngemiqondiso yengcinezelo okanye ukucaphuka. Uya kufuna ukukhangela:
- Iibala ezibomvu ezingahambi emva kwemizuzu eyi-10-15
- I Bruise
- Imiqwenga
- Ukutyalwa
- Blisters
- Burns
Ukuba uyaphawula nayiphi na yezi zinto kwesikhumba somntwana wakho, qha ga mshelana nomboneleli wezempilo. Ukugqoka okukhethekileyo okanye unyango olufunekayo ukunceda ulusu luphilise.
Ukuba umntwana wakho uhambahamba, qiniseka ukuba akayikudonsa iinyawo / imilenze okanye ukudala ukuxubana kuyo nayiphi na inxalenye yomzimba. Ezi ntshukumo eziphindaphinda ezibangela ukuxubana kwesikhumba zingakhokelela ekuphukeni kwesikhumba ngokukhawuleza. Ezi zilonda zinokutheleleka kalula, ngoko qiniseka ukuba ufuna unyango xa uqaphela ukuba umntwana wakho uhlakulela lolu hlobo lokuphulwa kwebala.
Ukuba ungena kumkhwa wokwenza uhlolisiso lwesikhumba ubuncinane bemihla ngemihla kwaye ufundisa umntanakho iindlela zokudlulisa ezifanelekileyo njengoko ekhulile ngokwaneleyo ukuba azungeze yena ngokwakhe, akunjalo kunzima ukukhusela ukuphuka kwebala.
Hydrocephalus
Phantse iipesenti ezingama-80 zeintsana ezizalwe nge-spina bifida nazo zinezifo zonyango ezibizwa ngokuba yi-hydrocephalus. Ngokwemigaqo yomntu, ngokuqhelekileyo kuthiwa "ngamanzi engqondweni," nangona loo nto ayichazi kakuhle. I-Hydrocephalus iyinani elingaphezulu kwe-cerebrospinal fluid (CSF) ecaleni kwengqondo. Abantwana abane-hydrocephalus bavame ukuhlinzwa ukuze bafake idivayisi ebizwa ngokuba yi-ventriculoperitoneal (VP) shunt, okuyiyo nje ityhubhu ephuma kwii-ventricles zengqondo kwi-peritoneal space kwisisu. Ivumela umbane ukuba ugxothwe ebuchosheni aze afike esiswini apho engena emzimbeni.
Latex Precautions
Abantwana abaninzi abane-spina bifida banesifo se-latex okanye badinga ukuthatha amanyathelo okulinda emva kwexesha emva kokuba i-latex yokungasebenzi ikwazi ukuphucula nanini na. I-latate allergies ngokuvamile ikhula ngenxa yokuqhagamshelana rhoqo kunye neemveliso eziqulethe i-latex. Ngenxa yesidingo sokwenza i-catheterization (kunye nezixhobo eziqulethe i-latex) ngamaxesha amaninzi ngemini, imihla ngemihla, abaninzi abantu abane-spina bifida baphela ngokugqithisileyo okanye ukuvaleka komva.
Ukuba unomntwana one-spina bifida, kufuneka uqaphele iimpawu zendlela yokuphendula. Ngenxa yokuba inokukhula ngokukhawuleza emva kwexesha, kufuneka ukwazi ukuba ubukele ntoni.
Iimpawu eziqhelekileyo zokuphendula ngokuthe ngqo ziquka:
- Ukutshiza
- Ubomvu / ukrakra isikhumba
- Ukukrazula kunye / okanye impumlo
- Iitchy, amehlo amanzi
- Isiqhamo
- Izwi elihla
- Ukuphefumula okanye ukuphefumula
Impembelelo eyingozi kakhulu ebizwa ngokuba yi- anaphylaxis ingahlakulela nanini na. Imiqondiso ye-anaphylaxis iquka:
- Ukuphefumula okunzima
- Ukunyakaza kweelwimi kunye nolwimi
- Utywala
- Ukudideka
- Ukuhla kwegazi
- Ukuvutha
- Intetho edibeneyo
- Ukulahleka kwengqondo
Ukuba ubona iimpawu zempendulo yokuthintela, xhumana nomniki-nkonzo wakho wezempilo ngokukhawuleza. Ukuba ucinga ukuba umntwana wakho unokufumana impendulo ye-anaphylactic, fowuni ye-911 okanye ufune ingqalelo yonyango ngokukhawuleza.
Ukuhlinzwa
Abantwana abane-myelomeningocele-uhlobo olubi kakhulu lwe-spina bifida-ngokuqhelekileyo badinga ukuhlinzwa. Kwezinye iimeko, oku kungenziwa ngo-utero, ngelixa unina usakhulelwe. Olu hlobo lotyando aluqhelekanga, ngoko ayikho inketho kuyo yonke indawo. Abanye abantwana baya kufuna ukuhlinzwa emva kokuzalwa. Xa ufumana ukuxilongwa kwe-spina bifida, ugqirha wakho uya kuxubusha okukhethwa kukho ukhetho lokunyanga kunye nawe kwaye unqume oko umntwana wakho aya kuyifuna, ukuba nantoni na.
Igama elivela kwi-Verywell
Ukujongana nokuxilongwa kwengane ka-spina bifida kunokuba kunkwantya kwaye kuphazamise, kodwa akumele kube njalo. Ngokuqhelekileyo iimeko eziphathekayo njengoko nje unolwazi kwaye ulungisiwe. Kubalulekile ukukhumbula ukuba umntwana wakho ungumntwana kuqala. Akachazwa ngokuxilongwa kwakhe kwaye akadingeki ukuba ahluleke kakhulu. Ukuba awunakuvakalelwa ngale ndlela njengomzali ekuqaleni, kulungile. Zinike ixesha lokujamelana, ukulila, okanye ukuza kutshintsha ngokubhekiselele kwindlela ophila ngayo. Njengoko unina womntwana onemfuno ezizodwa, ndiyazi ukuba akuyona indlela elula. Ngenhlanhla, ndifumana inzuzo yokwazi indlela enhle ngayo. Ngaphezu kwakho konke, thanda umntanakho wenze okusemandleni akho ukumnika ubomi obuhle kakhulu.
> Imithombo:
> Ubunzima / Isilwanyana Isidingo kunye Nonyango - spinabifidaassociation.org. http://spinabifidaassociation.org/find-support/resource-directory/bowel-and-bladder-needs-and-care/.
> CDC. Amaqiniso | Spina Bifida | NCBDDD | CDC. Amacandelo okuLawula nokuKhuselwa kwezifo. https://www.cdc.gov/ncbddd/spinabifida/facts.html. Ipapashwe ngo-Oktobha 17, 2016.
> I-Hydrocephalus Fact Sheet Sheet ... Isiko seSizwe seNational Psychology and Stroke. https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Hydrocephalus-Fact-Sheet.
> I-Rubber yendalo yeLatex Allergy - spinabifidaassociation.org. http://spinabifidaassociation.org/project/natural-rubber-latex-allergy/.
> Izidingo ze-Orthopedic & Care - spinabifidaassociation.org. http://spinabifidaassociation.org/find-support/resource-directory/orthopedic-needs-and-care/.