I-Bill ye-NICU yabaLungelo bamalungelo ngumqulu obalulekileyo kunye neenjongo zokunceda ukudala ukucaca nokukhusela abantu.
UMthetho oYilwayo wamaLungelo yindlela ecacileyo yokuba abazali baqonde ukuba bangacela ntoni kwaye balindele ngexesha lokuhlala kwabo kwi-NICU. Olu luhlu lwezinto ezili-10 ezibalulekileyo nento into yokuba abasebenzi be-NICU bafanele baxabise baze bazame ukuzukisa xa benakekela abazali beigulane zabo ze-NICU.
Ngomzuzwana, siza kujonga kwiintetho ezili-10 kwiBhili yamaLungelo kaMzali weNICU. Kodwa kuqala, kufuneka sibuze:
Kutheni i-NICU Abazali bafuna iBhili yamaLungelo?
Iintsana ezizalwe ekuqaleni, okanye ezizalwe zizifo ezibuthakathaka, zifuna uhlobo olunonophelo lolondolozo lwezobugcisa abazali abodwa abanako ukubonelela. Ezi ntsana zifuna unonophelo olunzulu, kwaye ke uqala uhambo lwentsapho kunye neCandelo leNonophelo loLondolozo lweNonatal .
Olu hambo lunye apho abazali beba nemfundo encinane kakhulu, ukulungiselela kangangoko. Kunobubele kakhulu kangangokuba kuba nzima kubazali ukubuyela emva baze bacinge ngeenjongo zabo ezinkulu kunye namaphupha kunye nosana lwabo olutsha. Kunoko, abazali banokuvakalelwa ngathi baqhutywe kwisiganeko sogqirha lwezonyango kunye nezixhobo eziyinkimbinkimbi, zijikelezwe ngabasebenzi abonakala bazi konke malunga nosana lwabo. Kubuhlungu kakhulu, ukuthetha ubuncinci.
I-NICU nganye kulo lonke ihlabathi ihluke, oko kuthetha ukuba abazali abafumana inkxaso bahluke kakhulu kwi-NICU ukuya kwi-NICU.
Abanye abazali abanakuze bafune iBhili yamaLungelo ukukhokela abasebenzi babo be-NICU kuba baxhaswa ngokumangalisayo, badibene, kwaye banakekelwa. Kodwa ngelishwa, abanye abazali be-NICU banenkxaso encinane kakhulu, baziziva bebodwa kwaye badidekile malunga nendlela abanokubambisana ngayo kunye nokuthatha inxaxheba ebomini babo.
Ngethamsanqa, iqela elizinikeleyo labazali abanomdla abaye bafumana eli lizwe bangenelela ukunceda.
Bayazi ukuba kwakunjani ukuba ngumzali weNICU umntwana, kwaye bayazi ukuba bafunayo bebekhona kubo xa abantwana babo beNICU.
Ngubani odale i-NICU abazali iBill yamaLungelo?
Ngo-2013, i-Preemie Parent Alliance yabhala eli gama elihle, uxwebhu olucatshulwa ngokucophelela olucacisa izinto ezibalulekileyo ezikhunjulwayo ukuba zikhumbule malunga nokuba ngabazali beNICU bahamba njani kwaye bafanelwe njani ukuxhaswa endleleni.
Le ntlangano-i-PPA-iquka iinkokeli zokucinga kwihlabathi le-Preemie Parent inkxaso, ngoko kuyimvelo ukuba eli qela labazali linamava kunye nokuzinikezela ukuba bakwazi ukudala uncwadi olubalulekileyo.
Bayidala ngokusekelwe kwisiseko sokunyamekelwa kwentsapho eyona ndlela efanelekileyo yokunyamekela iintsana kunye neentsapho zabo. Imibutho enonophelo yoluntu lwempilo efana ne-American Academy ye-Pediatrics, i-American Hospital Association, kunye nokunyamekelwa ngononophelo lwentlalo njengendlela ebalulekileyo yokunakekelwa kakuhle kwezigulane. Kwaye ngezizathu ezifanelekileyo-uphando oluninzi luye lwabonisa iingenelo ezintle zokunakekelwa kweentlalo kwiNICU.
Aba bazali be-NICU baphando ngemibandela ebalulekileyo kubazali be-NICU, abhalwa kwaye bahlelwe, baxoxwa kwaye baguqulwa baze bafike kwiluhlu olulishumi lwabamalungelo abalulekileyo abakholelwa ukuba bonke abazali be-NICU bafanele baqaphele.
Ngokungafani neziTshintsho zoMgaqo-siseko, nangona kunjalo, lo Mthetho-mali awunalo nawaphi na igunya elisemthethweni. I-NICU ayifuni ukuba ivumelane nabo, kwaye ayifumanekanga. Kunjalo.
Ngoko kuya kubazali ngabanye kunye nabongikazi, oogqirha kunye nabagqirha, ukuba bafunde kabanzi malunga nalo kwaye bafumane iindlela zokuyiphumeza kwi-NICU yabo.
Ngoku, makhe sijonge kwiingxelo ezilishumi ezibandakanya iBhili yamaLungelo kaMzali weNICU:
I-Bill ye-NICU yabaLawuli bamalungelo kwi-Preemie Parent Alliance
UMthetho oYilwayo wamaLungelo unxulumene nalezi zithethi ezilishumi, njengoko zitshilwa ngombono weNICU umntwana:
1. Abazali bam lizwi lam kunye nabameli bam abalungileyo; Ngoko ke, imigaqo-bhedlele, kubandakanywa iiyure zokutyelela kunye nokujikeleza, kufuneka ibe yinto ebandakanya ngokubanzi.
Le nkcazo yokuvula igxininisa into yokuba abazali bayalwela ukubhekwa njengabalulekile amalungu eqela lokunyamekela umntwana. Ngokuqhelekileyo, imigaqo-bhedlele yexesha elidlulileyo ikhawuleze ukususa abazali kwi-NICU. Nangona oko kungabaluleke kakhulu ukwenzela ukuba i-NICU ibonelele ngononophelo kunye nobucala bentsapho, ngokuqhelekileyo iquka iintsapho ngokungenasidingo. Kwaye ukuba ukukhutshwa kubonakalisa kakhulu abazali kubadibanisa neentsana zabo. Ngoko inqaku lokuqala libeka ithoni yeYilwayo yonke yamalungelo-isikhalazo sokubandakanya abazali ngangokunokwenzeka.
2. Ukuze ndilungele ukuhlangabezana neemfuno zam xa ndikhutshwa , abazali bam kufuneka baqonde ukuxilongwa kwam. Yiba nomonde kwaye ubafundise kakuhle.
Esi sikhumbuzo esilula kubaqeshwa be-NICU-abazali bafuna ukuqonda okucacileyo kwazo zonke izifo zokuxilongwa kwezokwelapha ukuze banakekele kakuhle abantwana babo. Ngamanye amaxesha oogqirha kunye nabongikazi abakwazi ukuqonda ukuba abazali abayiqondi into eyenzekayo.
3. Ukubambisana kubalulekile ekuphuhliseni kwam. Vumela kwaye ukhuthaze abazali bam ukuba bandibambe rhoqo ngangokunokwenzeka.
Wonke umzali unqwenela uxhamlo oluqinileyo kunye oluhle kunye nosana lwabo. I-NICU iphazamisa ukudibanisa, ngeendlela ezininzi. Ukuhlukana ngokwenyama, ukungabikho kwezandla-ukunyamekela, ukukhathazeka, kunye nokukhathazeka konke kuhamba ngendlela elula, ukuxhamla kwendalo. Ngenxa yoko aba bazali kunye neentsapho badinga ingqwalasela eyongezelelweyo ekuncediseni loo fom yesondlo.
IiNICU zokuphayona sele zikulungele ukuhambisa iintsana ezisuka kwiibhedi zonyango eziyinkimbinkimbi kwaye zibeke isikhumba ukuba zikhuphe nabazali babo ngaphambili nangaphambili, ezenza abazali bazive bexhunyiwe. Uphando lubonisa ukuba ukunakekelwa kwe-kangaroo kunenzuzo .
4. Nceda ulungiselele abazali bam ukuba babe ngabancedi bam kuqala xa ndibuyela ekhaya. Bakhuthaze ukuba bathathe inxaxheba kwinkathalo yam imihla ngemihla ngangokunokwenzeka.
Ukunyamekela umntwana wabo yinxalenye ebaluleke kakhulu abazali abanayo. Xa abazali bengenako ukubonelela nayiphi na inkxalabo malunga neentsana zabo, kukhululeka kakhulu. Ngomgudu omncinci, abazali banokufundiswa ezininzi iinkathalo eziqhelekileyo ezibangelwa ngabahlengikazi. Lo mbandela kwiBhili yamaLungelo awubalulekile kuphela xa iintsana zibuyela ekhaya, kodwa kunceda ukunxibelelana ngexesha leNICU.
5. Ukutya kunceda abazali bam ukuba bazive "baqhelekileyo." Nceda bavumele ukuba bangondle ngebhotile okanye ibele, nokuba yeyiphi na into esebenzayo kum nabazali bam. Uncedo ukuqinisekisa umama ukuba kulungile ukuba akavelisi ubisi.
Xa uncinci uzivakalelwa ngokuqhelekileyo kwi-NICU, kuyinyaniso ukuba ukondla umntwana uvakalelwa njengomsebenzi obalulekileyo womzali, kwaye luxabiseke kakhulu njengenxalenye yamava adibeneyo.
Le nto ibaluleke kakhulu kubahlengikazi be-NIC ukuqonda nokuphumeza. Abanye abahlengikazi banokufumana indlela yokubanjelwa emsebenzini wabo onzima, ngokusoloko bezondla iintsana ngokwabo ukuba kuthetha ukuba imini yabo iya kuhamba kakuhle. Kwaye abayithandi intlungu, banomsebenzi onzima noxakekile ukwenza.
Kodwa le ngxelo yeBhili yamaLungelo yikhombiso ebalulekileyo yokuba ukondla, ngelixa mhlawumbi lingasebenzi kakuhle xa kwenziwa ngabazali, kubaluleke kakhulu kwinkqubo yokubambisana. Xa kunokwenzeka, kubalulekile ukugcina lo mcimbi kubazali.
6. Ukuba mna, okanye omnye wabantakwabo, sidlula ngelixa ku-NICU, khumbula ukuba uqhubeke usibhekisela kuthi njengeziphindaphindiweyo (iimbini / i-triplet / quads, njl.). Kubalulekile kubazali bam ukuba uyaqhubeka uzukisa kwaye uvuma ngamnye ubomi bethu.
Esi sicelo sivela kubazali abaye bahamba nale ntlekele ngokwabo. Bavumela bonke abantu ukuba bazi indlela efanelekileyo yokusingatha le meko.
Amaninzi amaninzi, abantu abazi indlela yokunyamekela ngokufanelekileyo nokukhathazeka ngokufa komntwana, kunye nabahlengikazi be-NICU kunye nabasebenzi. Akukho mntu ufuna ukuqhubekisa umzali osizileyo olahlekelwe ngumntwana , kaninzi abantu abanentsingiselo abanokuthi bavelise isihloko, benethemba lokuphepha ukuvakalelwa.
Kodwa abazali bathetha ngokuphindaphindiweyo ukuba bakhetha ukulahleka kwabo. Abazange balibale umntana wabo, kwaye baziva bexhala xa bonke abakujikelezayo babonakala belibalekile. Ngoko nceda uqhubeke uye ukhumbule ukukhankanya umntwana osweleyo-bayakuxabisa.
7. Nangona ndingaba yi -preemie yexesha elide , i-NICU isenokuba yindawo ephazamisayo kubazali bam. Qinisekisa ukuba bafumana i-TLC, ulwazi, imfundo kunye nezinto ezininzi ezifana nabazali bam bahlobo bam.
Esi sikhumbuzo esihle kakhulu sokwandisa enye inkathalo kunye nenkxalabo kubo bonke abazali, kungakhathaliseki ukuba ubude be-NICU bahlala okanye ubunzima besimo sabo somntwana. Nangona umntwana usenokuba nexesha elizinzileyo kwaye elincinane kwiNICU, abazali babo basoloko bexakekile, besaba, kwaye bafanelwe ukunyamekela ngokunyamekela.
8. Khuthaza abazali bam ukuba baye kwiinkomfa zononophelo baze bahlele rhoqo. Ziyinxalenye ebalulekileyo yenkathalo enxulumene nentsapho kwaye banceda bafundise abazali bam malunga nenkqubela yam kunye nexesha elide lokuxela.
Iyintoni inkomfa yenkathalo? Yintlanganiso yabazali be-NICU, abahlengikazi be-NICU, oogqirha, ootitshala, kunye nabani na omnye ochaphazelekayo ekunakekeleni umntwana. Leli thuba elowo wonke umntu obandakanyekileyo ebomini bentsapho ukuxoxa ngezinto ezenzekayo kwaye zeziphi izicwangciso zexesha elizayo.
Ngelishwa, abanye abazali be-NICU abazange banikezwe ithuba lokuba nenkomfa yenkathalo, kwaye ngaphandle kokuba kufakwe kwinkqubo yokwenza isigqibo, abazali basala bevakalelwa njengabagadi bamantombazana ebomini babo.
Iinkomfa zononophelo zinika abazali ithuba labo elifanelekileyo kwiqela, njengomntu oxabisekileyo okhathalela kakhulu isigulane, obani kwaye uya kuba ebaluleke kakhulu ebomini bomntwana.
9. Abazali bam banelungelo lokukwazi konke ngam. Makube nokufikelela okuvulelekileyo kwiirekhodi zam zonyango kwaye bakhuthaze imibuzo yabo.
Ngelishwa, abazali banqatshelwe ukungena kwiirekhodi ezinzulu zenkathalo yabantwana babo. Kwaye nangona abazali abaninzi bengakhathaleli ukuwamkela, abo bazali abanqwenela oko kufuneka babe nokufikelela kubo.
Ngokuqhelekileyo kubhekwe njengendlela efanelekileyo yokuqeqeshwa ngabantu abangaqeqeshelwa ngamachiza ukuhlaziya iirekhodi kunye nelungu leqela leenkonzo zokunakekela impilo, ukwenzela ukukunceda ukucacisa oko kuqulethwe kwiirekhodi. Enyanisweni, ezinye izibhedlele zifuna oku. Ngoba? Indlela ekhethekileyo yokutshatyalaliswa kwezonyango kunye noongikazi, kunye nesigama sesigqirha sezobugcisa, kunokubangela ukudideka nokukhungatheka xa kufundwa ngaphandle kwengqiqo nokukhokelwa. (Kuthekani ukuba unqatshelwe ukufikelela kwiirekhodi zakho?)
10. Abazali bam bafumana uluhlu lweengxaki ezinzima. Nceda ube nomonde, uphulaphule, kwaye ubole inkxaso yakho. Yabelana ngolwazi malunga nezibonelelo ezifana neenkqubo zenkxaso yoontanga, amaqela enkxaso kunye nokucebisa, okuya kunceda ukunciphisa i-PTSD, i- PPD , ixhala kunye nokuxinezeleka.
I-NICU inene, inzima kubazali . Nangona umsebenzi we-NICU oyintloko kukunyamekela umntwana, inyaniso kukuba abasebenzi be-NICU nabo bafanelekileyo kakhulu ukuqinisekisa ukuba abazali basele bephephile kwaye bakhuselekile kuyo yonke into. Ngoba? Ngenxa yokuba ingozi yokudakumba, i-PTSD kunye neyona nto iyinyani, kwaye abasebenzi be-NICU badibanisa nabazali imihla ngemihla. Oku kwenza ukuba bakwazi ukulungelelanisa kwaye bancede abazali bafumane uncedo abayidingayo.
Ininzi ye-NICU ayinakho ukuqeqeshwa okwaneleyo kubasebenzi bayo ngokubonelela ngononophelo lwengqondo kwaye ihlolisise abazali. Le nkcazo yokugqibela kwiBhili yamaLungelo iyimfuneko ye-NICU yonke indawo ukuqonda indima yabo, nokubonelela ngoncedo kunye nezinye izibonelelo kwezinye izigulane-ngabazali.
I-PPA iyonwabile ngabantu ngabanye kunye ne-NICU yokuprinta nokubonisa iBhili Yelungelo Labo Mzali. Zive ukhululekile ukukhuphela ikhophi yakho, okanye qha ga mshelana nePPA ukuba ungathanda ukuqhubela phambili ukuxoxa ngokusetyenziswa kweBhili yamaLungelo kaMalungelo eBala kwiziko lakho.
[I-Bill yeLungelo lamaLungelo kaMzali i-NICU ikopishwe apha ngemvume ye-PPA, ngoMeyi 2016]